Kristin’s Broadway Benefit
By Mel • Apr 10th, 2008 • Category: appearances, kristin chenowethKristin Chenoweth to Perform Benefit Concert for 3 Angels Memorial Fund titled, ‘Kristin Chenoweth, This One’s Personal: A Concert to Stop ACD’
Concert and Exclusive Auction to be Held on Saturday, April 12th at the Helen Mills Theatre in NYC
The 3 Angels Memorial Fund for ACD Research was founded by Hollywood actress NiCole Robinson and her husband, Craig Snyder, who late last year lived through the intense tragedy of losing a baby boy, Lincoln Snyder, at seven weeks old to a disease called ACD. This is the third child Craig has lost to the disease, making it nothing short of a genetic mystery.
Alveolar Capillary Dysplasia (ACD) is a thought to be rare genetic lung disease that has killed every baby known to be diagnosed with it. Prior to Lincoln’s death there were scarcely more than 114 cases documented in medical literature. ACD was believed to be linked to recessive genes found in both parents and Craig and his previous wife’s experience of losing two children seemed to confirm this. Years later, Craig and NiCole were married and, after having one healthy daughter, had Lincoln. Lincoln’s death has changed what scientists thought they knew about this disease. It now appears that ACD is caused by a dominant gene which only has to be carried by one parent. Therefore, many more children may be dying from ACD and we just don’t know it. The only way to diagnose ACD is to put lung tissue under a microscope. Since no autopsy is performed on many infants who die, many cases have certainly been misdiagnosed. The disease is known to strike very quickly and can present what appears to be a “sudden infant death”. Lincoln seemed perfectly healthy and then became gravely ill overnight.
The 3 Angels Memorial Fund for ACD Research is a non-profit organization based in Arlington, VA. The mission of the foundation is to raise awareness for ACD and work with leading doctors and geneticists to study the disease and work towards better diagnosis and prevention. Donations to the foundation are under the 501C3 tax code and are deductible to the fullest extent of the law. To learn more information on the foundation and disease, please visit http://www.3angelsfund.org/.
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